After feeling pretty guff for a while, I made an appointment to have my bloods taken. My iron is normally low and I struggle to take supplements so I guessed that was the problem. As it turned out my B12 was low and my GP called me in for a chat.
I asked him if my platelets were also low as I was bruising easily. And in weird places – I often have bruising on my knuckles, palm side of my hand for instance. He said that in fact they were on the high side. Oooh a conundrum.
He asked me about my general health – as well as feeling utterly exhausted I explained that I was aching everywhere. Joint pain, muscle feeling like dead weights and skin incredibly tender.
He decided that I needed some further tests and arranged a follow up appointment.
Naively, I assumed I’d go back and he’d have an answer and I’d feel better.
I went back. He had no answers. My test results were baffling as they were all negative despite having been tested positively for one previously.
I felt pretty low.
It’s not that I want to be ill. I don’t WANT to have ‘something’ but I was hoping that an answer would mean an end to feeling like I’m not really living my life. To not needing to sleep all the time. To my husband looking at me and saying, “Come on, let’s get you home to rest”. To being able to get back to being me.
So I’m pinning everything on my next appointment now…
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21andsensory said:
I feel exactly the same. I don’t want something but my blood tests all came back normal and I’m feeling ridiculously tired and I’m always so sweaty….it’s frustrating because you just want a diagnosis to make what’s wrong clearer.
sixdegreesofharmony said:
What tests have you had? How long since your last test? Apparently your levels can flip flop…
21andsensory said:
Blood tests, MRI and ultrasounds, hormone and vitamin levels, 24hr urines…
sixdegreesofharmony said:
Oh my goodness. Do they have any idea what they’re looking for? I have had tests for all sorts but mine are more ‘auto immune’ things
21andsensory said:
They think it’s an autoimmune thing both my sister and mum have autoimmune problems…it’s been 10 years of tests trying to work out what’s going on…I’m 21 now and still don’t have a diagnosis, but being referred again!
sixdegreesofharmony said:
That’s awful 😦 my mum has an autoimmune disease too. My knees have always been a problem but things are a bit erratic recently